For a parent of a child with disabilities, the world can seem very limiting and frustrating.It is this first-hand knowledge and experience that led to the formation of Caribbean Kids and Families Therapy Organisation (CKFTO). CKFTO was conceptualised in 2008 by visionaries parent Laura Pierre-Escayg and occupational therapist Sara Stephens. Thanks to the work of its dedicated voluntary Board, consisting of professionals, clinicians and parents; it has grown from a one-man show to a multi-disciplinary clinic with 8 employees, offering services across Trinidad and Tobago. “The founders had a clear picture of what they wanted, and I also strongly believe in it,” says Krista Hamel-Smith, the General Manager of CKFTO. Krista, who has always been interested in working with non-governmental organisations (NGOs), leapt at the opportunity to join the CKFTO family. “There are so many challenges the family faces just to help the child to lead a normal life. Sometimes, getting therapy on top of that — it’s just too much,” she says. “CKFTO functions as that bridge that can help the child function to the best of his or her abilities and lead a joyful life.”
CKFTO: Therapy with a differenceCKFTO provides paediatric assessment and direct treatment for children experiencing developmental, physical, cognitive, behavioural, emotional, learning, social, and communicational challenges. Part of its holistic approach to treatment is the inclusion of parents, siblings, schools and the wider community. This all-encompassing reach allows CKFTO to treat the complete person and help the child to realise its fullest potential. The goal of CKFTO is to reach as many families and children in T&T, especially those who struggle to make ends meet. Families are referred to CKFTO from medical practitioners, teachers, doctors, or other therapists that administer to a paediatric population see the children, or through the various associations for those with special needs. Often, families hear about the clinic through other families, or through searching online and finding their website www.ckfto.org; or their Facebook page, which offers a vast collection of tips and information. “Families are in dire need, and parents are always searching desperately for resources and support that can help their child,” says Krista. “We are humbled to be able to provide services for the many who may not have been able to access therapeutic services prior.” While the clinic does not offer services for free, great emphasis is put upon keeping the cost as low as possible for families in need. As part of its mandate, services are offered on a sliding scale. Subsidy is offered up to 80% of fees based on established financial and socio-economical criteria. Another of the key problems these families face is access to therapy services, which is one of the issues CKFTO aims to address. “There are so many remote areas, where communities may not even know about all the available resources,” adds Krista. “Even if they do know about what we offer, getting to therapy presents a challenge — regular public transport is sometimes not an option, particularly when the child has special needs.”
Therapy & Support Programmes at CKFTOOn average, CKFTO delivers more than 300 therapeutic sessions monthly, servicing more than 100 children and families each month. Based on the initial assessment, each child would do rotations through the types of therapy available.
- Occupational Therapy involves the therapeutic use of purposeful and meaningful activities to promote health and wellness. It focuses on the promotion of fine motor, perceptual, cognitive and developmental skills in children with various levels of special needs and learning differences.
- Music Therapy uses music as a therapeutic tool to restore, maintain and/or improve a child’s physical, emotional, social, cognitive and psychological well-being.
- Aqua Therapy uses the buoyancy of water to facilitate movements that are not achievable outside the aquatic environment. The hydrostatic pressure of the water provides a blanket of deep pressure to the child’s largest organ: the skin. Unique properties of the water allow children to work on development skills such as crawling, walking, rolling and jumping.
- HOPE (Helping Our Parents to become Empowered) Support Group A parental/caregiver support group for families of children with special needs, where parents can come to find out parenting tips, information, solutions, education, support and understanding.
- Sibshops ® A support group for children with siblings with special needs. Sibshops ® are best described as opportunities for brothers and sisters who have a sibling with special needs to obtain peer support and education within a recreational setting.
- The Alert Programme (8 weeks) An occupational therapy group to teach children to self-regulate at home, school and in the community. The Alert Program assists children in understanding the basic theory of sensory integration related to arousal states. The primary focus is to help children learn to monitor, maintain and change their level of alertness so that it is appropriate to a situation or task.
- Sensational Kid (10 weeks) This programme aims to identify and implement success oriented strategies for regulating sensory based needs, increasing and strengthening gross motor skills needed for strength, coordination and balance; as well as fine motor skills needed for eating, dressing and handwriting.
- Motor Group (12 weeks) An informative, supportive and interactive program for parents/caregivers and children to experience, learn and practice increased range of motion, sustained movement and motor planning using occupational and music therapy based techniques. Aimed at children struggling with handwriting issues or now getting ready for the challenge of school, the programme is designed to assess and improve a child’s handwriting abilities for increased efficiency, improved legibility and decreased frustration at home and school.
- Learning through Integration of Meaningful Experiences (LIME) (10 weeks) A music therapy based group program that focuses on using music therapy techniques to develop/maintain/strengthen skills in social, cognitive, emotional and psychological areas of development within a safe and success oriented group experience.
Raising awareness about disabilitiesBeyond the direct treatment groups offered at CKFTO, the clinic works diligently to spread awareness about disabilities to the general public, with a particular focus on children. One of these efforts is the Count Me In ® puppet show, which uses child-size multicultural puppets that portray children with disabilities. Through this demonstration, the puppets help to dispel myths and fears about people with disabilities. “The campaign is not about any one disability but for the benefit of the country,” explains Krista. “The puppet show goes to schools free of charge, and gives children an opportunity to ask questions. People are always afraid of what they don’t know, so by having children learn about these from a very young age, we are changing the way the country sees disabilities.” Another aspect of community education is teacher training. “Many of these children go to mainstream schools, and may be labelled as disruptive or difficult if the teacher does not understand how to deal with them,” adds Krista. “There are simple solutions to some of these problems, so it is important for the teacher to know how to identify some of these problems the children face.” CKFTO has also partnered with The National Centre for Persons with Disabilities (NCPD), working on social integration of teenagers and adults to help the differently-abled to graduate from a ‘disabled child’ into a successful adult with skills that can be employable. This partnership forms the programme sponsored by global energy company Repsol, called Social Integration of Persons with Disabilities (SIPD). SIPD is an awareness campaign that aims to create national awareness regarding disabilities. “It is always a struggle, at every step of the way,” notes Krista. “There is so much that needs to be done, and only so much that we can do. But what we are able to do, what we have been able to do so far — it warms my heart, just seeing the children reaching a milestone, and knowing that our therapists are making a difference. It is so important for each and every one of us to do what we can, to be part of something bigger.”
For more information, contact CKFTO at 1 (868) 628-3268 or email@example.com. You can also visit www.ckfto.org, and sign up for their quarterly e-newsletter.
Also check out CKFTO’s Facebook page and the Facebook page for Social Integration of Persons with Disabilities.
What You Need to Know
- If you want to be part of something bigger, get involved with CKFTO’s “Sponsor A Child” programme, an opportunity for individuals and organisations to make a small commitment to one child in need. This sponsorship covers the cost of transportation, therapy, and equipment devices such as a language learning tool.
- CKFTO always welcomes volunteers, particularly for the Count Me In ® puppet show, summer camps and support groups.